The Enigmatic Persona

Last week was very rough for her.  It was supposed to be a good week since it was her off week from Xeloda.  I was hoping and anticipating her return to “better” health during this week, but the pain and nausea persisted and would not relent.  By this time she was not able to take Protocel due to vomiting.  Her intake of food is minimal, weakening her even more.  It is the vicious pain cycle that somehow needs to be broken.  With pain, she needs to take pain killers (Percocet, Methadone, Fentanyl patch, Motrin, and some other things that may not be legal in certain states, but perfectly legal in the Chang household) in high doses.  The side effects of this are nausea and constipation, further exacerbating her decreased appetite.  With decreased intake of good food, her body takes much longer to heal itself leaving the pain unchallenged, thereby requiring the constant flow of pain medication which causes the cycle of side effects to perpetuate endlessly.  The goal is to wean her off of these pain medications so her body can normalize itself once again and accelerate the healing process.

As I alluded to last time, we’ve decided to stop Protocel altogether.  As a believer, I have to believe that Protocel has served its purpose in this fight.  The reason?  In Matthew 7:9-11 the Bible says “Which of you, if your son asks for bread, will give him a stone? 10 Or if he asks for a fish, will give him a snake? 11 If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him!”  We’ve been sincerely asking for guidance and wisdom and felt compelled to try Protocel.  So it did serve a purpose.  Just don’t know what that is at the moment.  All things in due time.  So we’ve moved on to other holistic treatments which I’ll explain at a later post.

The Great Adventure (aka being married to Carmen) continues

Getting back to last week, she was due to get her blood work for the upcoming cycle of Xeloda.  She had been very weak and constantly nauseous and in pain.  So on Wednesday I came home early to take her to Lab Corp to get her blood drawn.  We needed to see if her blood counts were ok or if they were low.  She was so lethargic and pale that I assumed they would be low.  So after discussions with Gene and her oncologist, we decided to be on the safe side and take her in to the ER.  That way she can get all her blood work done and get treated right away (i.e. transfusion) if she needed it.  So I called Brian Gee and told him that I would be bringing her to Little Company in a few hours (Wednesday, 10/31).  Brian was good enough to come meet us there to make sure we were taken care of.

The result of the blood work once again astonished me.  It was all normal.  How, in her weakened state with minimal nutrition and continual vomiting, could her kidney/liver function be ok, and all blood counts be normal?  She certainly is an enigma and very resilient, which is what we desperately need her to be.

This hospital stay was very hollow for me.  Usually when one goes to the hospital there is an expectation that they will get better when they leave.  In our case, there is no such thing.  A hospital stay is just stabilization and nothing more.  The cause of it all is still there and does not change and there’s nothing they can give to make it go away.  An infection can be treated at the hospital with strong antibiotics, so when you leave the hospital it’s all fixed.  Not this.  This fix is very far away and the journey is very difficult and painful.

Needless to say it takes a lot of effort to care for Carmen.  When I leave for work someone needs to come and help Carmen and take care of Audrey.  So for the past 2 months we’ve had a few people go completely out of their way to helping us out.  Monday’s are reserved for Kate Bae, Carmen’s unni.  She comes at 8am and stays to 2 or 5.  Tuesday is my sister Jaycei, usually all day.  Wednesday morning is Grace and/or Anna from church, and the afternoon is usually Sara.  Thursday is my Junior High School friend Justine (she’s a cop!) whose flexible schedule allows her to spend the entire day.  She spent Wednesday night at our place when Carmen and I were at the hospital overnight.  Sarah from church and Anita have helped fill in gaps during the week as have others.  Her childhood friend Miriam has taken sporadic days off of work to come and take a “shift”.  So the week is usually fully covered with friends and my family.  Jenny H for bringing goodies from Target, and Jenny Y for constantly praying and bringing her things to eat and try.  Han for organizing the help that so many have chipped in for, and Gene for being the ever present adviser.  Her youngest sister Ana for coming over on the weekends to entertain the girls so I can pester Audrey and nag Carmen all weekend long.

My parents have been coming over about 3-4 times a week after work driving from Cerritos with dinner so I can eat somewhat in peace as they watch Audrey, who’s become as bossy and demanding as her mom.  My mom often times comes over from Cerritos, picks up Carmen and takes her to foot therapy in Buena Park, then drops her off, then goes home, which makes for very long days for her.  This sacrifice has made them much closer.  Since they own a flower shop they usually bring her flowers.  The last time they went to foot therapy, they had a pretty cool moment when the doctor looked at Carmen and said the worst may be behind her.  Both cried together.  That time now seems like an eternity away seeing Carmen’s frailty right now.

In Due Time…

A quick note on these 3 words.  I had written the above post on 11/5/13.  I couldn’t understand the Protocel issue, but I left it with God and wrote “All things in due time.”  The very next day, 11/6, I look at the daily verse in my Bible app and the verse is from 1 Peter 5:6 which reads

“Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time.”

 

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5 thoughts on “The Enigmatic Persona

  1. Just read email message about Carmen I am Stella Ordonio Marissa Oh mom I met Carmen few yes ago here I’m Long Beach if there is any way I can help your family please please let me know I’m retired and have time I think of Carmen and family my daily thoughts n prayers r with her again of o can help in any way email me message or even text me at 562 7437505 Love StellaSent from my Verizon Wireless 4G LTE smartphone

    Signet Ring and a Baby wrote:

    a:hover { color: red; } a { text-decoration: none; color: #0088cc; } a.primaryactionlink:link, a.primaryactionlink:visited { background-color: #2585B2; color: #fff; } a.primaryactionlink:hover, a.primaryactionlink:active { background-color: #11729E !important; color: #fff !important; }

    /* @media only screen and (max-device-width: 480px) { .post { min-width: 700px !important; } } */ WordPress.com

    jchang34 posted: “Last week was very rough for her.  It was supposed to be a good week since it was her off week from Xeloda.  I was hoping and anticipating her return to “better” health during this week, but the pain and nausea persisted and would not relent.  By this tim”

  2. Just would like to send Psalms 94 verses 18 and 19 how The Lord will comfort us when we r filled with caresSent from my Verizon Wireless 4G LTE smartphone

    Signet Ring and a Baby wrote:

    a:hover { color: red; } a { text-decoration: none; color: #0088cc; } a.primaryactionlink:link, a.primaryactionlink:visited { background-color: #2585B2; color: #fff; } a.primaryactionlink:hover, a.primaryactionlink:active { background-color: #11729E !important; color: #fff !important; }

    /* @media only screen and (max-device-width: 480px) { .post { min-width: 700px !important; } } */ WordPress.com

    jchang34 posted: “Last week was very rough for her.  It was supposed to be a good week since it was her off week from Xeloda.  I was hoping and anticipating her return to “better” health during this week, but the pain and nausea persisted and would not relent.  By this tim”

  3. Jack & Carmen, i’m amazed by the level of friendships you both have been able to achieve over the years! The production it takes to operate your current life, as you have described would not be possible if it wasn’t for all that you’ve invested in your friends and family. You guys are a blessing to each one of us as well!

  4. PRAYING FOR CARMENSent from my Verizon Wireless 4G LTE smartphone

    Signet Ring and a Baby wrote:

    a:hover { color: red; } a { text-decoration: none; color: #0088cc; } a.primaryactionlink:link, a.primaryactionlink:visited { background-color: #2585B2; color: #fff; } a.primaryactionlink:hover, a.primaryactionlink:active { background-color: #11729E !important; color: #fff !important; }

    /* @media only screen and (max-device-width: 480px) { .post { min-width: 700px !important; } } */ WordPress.com

    jchang34 posted: “Last week was very rough for her.  It was supposed to be a good week since it was her off week from Xeloda.  I was hoping and anticipating her return to “better” health during this week, but the pain and nausea persisted and would not relent.  By this tim”

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